The longitudinal study Kids-CAT has been supervised by Prof. Dr. Ulrike Ravens-Sieberer (University Medical Center Hamburg-Eppendorf) and has been conducted in cooperation with Prof. Dr. Matthias Rose (Charité, Berlin), Prof. Dr. Ute Thyen (University Hospital Schleswig-Holstein, Campus Lübeck), Prof. Dr. Silke Schmidt (University of Greifswald) and Dr. Marcus O. Klein (University Hospital Schleswig-Holstein, Campus Kiel).
The Kids-CAT Project was funded by the Federal Ministry of Education and Research (Bundesministerium für Bildung und Forschung, BMBF). Additionally, it has been supported by the German Association for Allergies and Asthma (Deutscher Allergie- und Asthmabund e. V., DAAB), the German Association for Diabetes (Deutscher Diabetiker Bund e. V.) and the Paediatric Network (Pädiatrisches Netzwerk, PAED-Net).
The Kids-CAT project aimed at developing the first German computer-adaptive test (CAT) for measuring health-related quality of life in healthy as well as in chronically ill children and adolescents.
The final Kids-CAT instrument will provide a methodologically appropriate screening of health-related Quality of Life in children which shall be implemented in routine paediatric care. It has been developed based on Item Response Theory (IRT) facilitating an efficient, precise, reliable and valid assessment of HRQoL.
The Kids-CAT software will then be available for wide applications in paediatric care and research. The Kids-CAT project (University Medical Center Hamburg-Eppendorf, Germany) and the Paediatric PROMIS project (CHOP, Philadelphia, US) are closely collaborating. The German Kids-CAT and the US paediatric PROMIS item banks were developed using similar quantitative methods (Classical Test Theory and Item Response Theory).
Contact: PD Dr. Christiane Otto (firstname.lastname@example.org)
Barthel, D., Otto, C., Nolte, S., Meyrose, A.-K., Fischer, F., Devine, J., . . . Ravens-Sieberer, U. (2017). The validation of a computer-adaptive test (CAT) for assessing health-related quality of life in children and adolescents in a clinical sample: study design, methods and first results of the Kids-CAT study. Quality of Life Research, 26(5), 1105-1117.
Barthel, D., Fischer, K. I., Nolte, S., Otto, C., Meyrose, A. K., Reisinger, S., . . . Ravens-Sieberer, U. (2016). Implementation of the Kids-CAT in clinical settings: a newly developed computer-adaptive test to facilitate the assessment of patient-reported outcomes of children and adolescents in clinical practice in Germany. Quality of Life Research Journal, 25(3), 585-594.
Devine, J., Otto, C., Rose, M., Barthel, D., Fischer, F., Mülhan, H., . . . Ravens-Sieberer, U. (2015). A new computerized adaptive test advancing the measurement of health-related quality of life (HRQoL) in children: the Kids-CAT. Quality of Life Research Journal, 24(4), 871-884.
The Kids-CAT project won the "Lilly Quality of Life Award" 2016.