2024

Experiences and the psychosocial situation of parental caregivers of children with spinal muscular atrophy against the background of new treatment options: a qualitative interview study
Brandt M, Driemeyer J, Johannsen J, Denecke J, Inhestern L, Bergelt C
BMC PSYCHOL. 2024;12(1):566.

Patient experiences of interprofessional collaboration and intersectoral communication in rare disease healthcare in Germany - a mixed-methods study
Inhestern L, Otto R, Brandt M, Zybarth D, Oheim R, Schüler H, Mir T, Tsiakas K, Dibaj P, Zschüntzsch J, Okun P, Hegenbart U, Sommerburg O, Schramm C, Weiler-Normann C, Härter M, Bergelt C
ORPHANET J RARE DIS. 2024;19(1):197.

Auswirkungen einer Pandemie auf Menschen mit Seltenen Erkrankungen und Empfehlungen zur Aufrechterhaltung von Versorgung und Teilhabe
Zybarth D, Brandt M, Mundlos C, Inhestern L
BUNDESGESUNDHEITSBLA. 2024;67(1):57-65.

2023

Experiences of Health Care and Psychosocial Needs in Parents of Children with Spinal Muscular Atrophy
Inhestern L, Brandt M, Driemeyer J, Denecke J, Johannsen J, Bergelt C
INT J ENV RES PUB HE. 2023;20(7):5360.

Versorgung von Menschen mit Seltenen Erkrankungen: Empfehlungen für eine gelungene intersektorale Zusammenarbeit
Inhestern L, Brandt M, Otto R, Zybarth D, Härter M, Bergelt C
BUNDESGESUNDHEITSBLA. 2023;66(8):940-948.

Impact of the COVID-19 pandemic on health care and daily life of patients with rare diseases from the perspective of patient organizations - a qualitative interview study
Zybarth D, Brandt M, Mundlos C, Inhestern L
ORPHANET J RARE DIS. 2023;18(1):154.

2022

Parents as informal caregivers of children and adolescents with spinal muscular atrophy: a systematic review of quantitative and qualitative data on the psychosocial situation, caregiver burden, and family needs
Brandt M, Johannsen L, Inhestern L, Bergelt C
ORPHANET J RARE DIS. 2022;17(1):.

„Mindful Parenting“ – Achtsamkeit in der Eltern-Kind-Beziehung
Bröning S, Brandt M
Z KINDER JUG-PSYCH. 2022;50(5):395-406.

The impact of cancer on the mental health of patients parenting minor children: A systematic review of the quantitative evidence
Johannsen L, Brandt M, Frerichs W, Inhestern L, Bergelt C
PSYCHO-ONCOLOGY. 2022;31(6):869-878.

2020

Does a mindfulness-augmented version of the German Strengthening Families Program reduce substance use in adolescents? Study protocol for a randomized controlled trial
Arnaud N, Baldus C, Laurenz L, Bröning S, Brandt M, Kunze S, Austermann M, Zimmermann L, Daubmann A, Thomasius R
TRIALS. 2020;21(114):.

Interface management concepts in healthcare for rare diseases in Germany: a study protocol for a mixed-methods study to develop best practice recommendations
Inhestern L, Zybarth D, Otto R, Brandt M, Härter M, Bergelt C
BMJ OPEN. 2020;10(11):e040470.

Letzte Aktualisierung aus dem FIS: 16.05.2025 - 07:19 Uhr