UKE - University Cancer Center Hamburg - Hubertus Wald Tumor Center

Patient support groups

The diagnosis cancer is an existential threat for many patients, with which they are usually suddenly confronted and which changes their lives completely. “How to go on?”, is an often wondered question after the diagnosis. Patient support groups offer (not only) in this situation consultation and guidance for patients and their relatives. You can profit from the experiences of other affected persons and gather helpful information and support on how to plan the next steps.

In the 2009 resolution of the cancer self-help organization “Psycho-social support for humans with cancer” (Psychosoziale Unterstützung für Menschen mit Krebs) it is written down: The supporting services of self-help groups shall be integrated into therapy after the diagnosis. Especially conversation with trained and also affected workers from self-help organizations as well as authentic and patient-oriented information in word and writing on living with the disease and maybe any handicaps are useful.

As Hubertus Wald Tumor Center – University Cancer Center (UCCH) we take it for granted to support our patients in getting involved with patient self-help groups. The contact information about patient support groups cooperating with the UCCH and supra-regional one can be found at the bottom of this page.

You can find a selection of brochures and information material of Hamburg- and Schleswig-Holstein-based patient support groups in our waiting rooms in the oncological outpatient clinic and our UCCH Central Entry Port. Because the self-help groups matter to us, we support them with specialized offers and assist them with their projects and events.

Conversation and group management training

Dr. phil. Frank Schulz-Kindermann, head of the outpatient clinic at the Institute for Medical Psychology, offers in regular intervals a communication training for self-help group leaders, in which they can learn how to deal with burdening situations or „special“ members, train group leading and group dynamics as well as to handle hope, sadness and uncertainty and practice situations in role plays.
Patient support group room at the UCCH

For meetings of our cooperating patient support groups the UCCH offers a room at fixed times at the University Medical Center Hamburg-Eppendorf in building O24 next to the UCCH Central Entry Port.
Joint projects with patient support groups

We also offer our support to patient self-help groups in organizing their own projects: e.g. we assist in event planning, provide locations on the clinic campus if possible or our healthcare professionals give talks and presentations. If you have any idea for a joint project, feel free to contact us, and we will together think through on how to realize it.
List of cooperating patient support groups

Note that these are German-speaking groups. Please contact the groups directly to find out if consultancy in English is possible.
Aktion Pink Deutschland e.V.
www.aktionpink.de
Allianz gegen Brustkrebs e.V.
www.allianz-gegen-brustkrebs.de
Amyloidose Selbsthilfe
www.amyloidose-selbsthilfe.de
Aplastische Anämie & PNH e.V.
www.aa-pnh.de
Arbeitskreis der Pankreatektomierten e.V.
www.bauchspeicheldruese-pankreas-selbsthilfe.de
back2life - Interessengemeinschaft stammzelltransplantierter junger Menschen in Hamburg
www.back2life-hamburg.de
BRCA Netzwerk e.V. - Hilfe bei familiärem Brust- und Eierstockkrebs
www.brca-netzwerk.de
Bundesorganisation Selbsthilfe Neuroendokrine Tumoren e.V.
www.net-shg.de
Bundesverband der Kehlkopflosen e.V.
www.kehlkopfoperiert-bv.de
Bundesverband Prostatakrebs Selbsthilfe (BPS) e.V.
www.prostatakrebs-bps.de
Das Lebenshaus e.V., regionale Patientengruppe, GIST Hamburg
www.daslebenshaus.org
Deutsche ILCO e.V. Hamburg
www.ilco.de
Deutsche Leukämie- und Lymphom-Hilfe e.V.
www.leukaemie-hilfe.de
Deutsche Stiftung für junge Erwachsene mit Krebs (TREFFPUNKT Hamburg)
www.junge-erwachsene-mit-krebs.de
Förderverein für Knochenmarktransplantation in Hamburg e.V.
www.foerderverein-kmt.de
Frauenselbsthilfe nach Krebs
www.frauenselbsthilfe.de
Kopf-Hals-M.U.N.D.-Krebs e.V.
www.kopf-hals-mund-krebs.de
Kraniopharyngeom-Gruppe Nord
www.kranio-nord.jimdo.com
Lungenkrebstherapie ZielGENau e.V.
www.zielgenau.org
Multiples-Myelom Selbsthilfegruppe Hamburg
www.plasmozytom-myelom-selbsthilfegruppe-hamburg.de
Netzwerk Neuroendokrine Tumoren (NeT) e.V.
www.glandula-net-online.de
NetzwerkStatt Krebs
www.netzwerkstattkrebs.de
OvarSH - Selbsthilfegruppen Eierstockkrebs
www.ovarsh.de
ProMann Hamburg
www.promann-hamburg.de
Prostatakrebs-Selbsthilfegruppe Altona
http://www.prostataselbsthilfe.de/
Prostatakrebs-Selbsthilfegruppe Hamburg
www.prostatakrebs-shg-hh.de
Prostatakrebs-Selbsthilfegruppe Heidekreis
www.prostatakrebs-sfa.de
Selbsthilfegruppe nach Krebs Süderelbe
Selbsthilfe Speiseröhre Hamburg
www.speiseroehrenkrebs-hh.de
Sherpa-Initiative im Förderverein für Knochenmarktransplantation e.V. in Hamburg
www.foerderverein-kmt.de
SHG Blasenkrebs Hamburg
www.blasenkrebs-shb.de
SHG Hamburg - Leben ohne Schilddrüse
www.sd-krebs.de
SHG Hautkrebs Buxtehude
www.shg-hautkrebs-buxtehude.de
SHG Hautkrebs Hamburg
SHG Hirntumor-Betroffene
www.hirntumor-betroffene-hamburg.de
SHG Lungenkrebs
www.selbsthilfe-lungenkrebs-hamburg.de
SHG Prostatakrebs Diepholz
SHG Prostatakrebs Pinneberg
www.prostatakrebs-selbsthilfe-pinneberg.de/
SHG Prostatakrebs Verden
Vereinigung Akustikus Neurinom e.V.
www.akustikus.de
Vulvakarzinom-Selbsthilfegruppe e.V.
www.vulvakarzinom-shg.de

Brochure

Further information and contact details can also be found in our new
information brochure (in German) (PDF 698 KB)

Head

PD Dr. med. Andreas Block, MBA

Avin Hell, Communication Manager

For more information on the range of services offered by the self-help groups, please contact:

+49 (0) 40 7410 - 57835

ucch@uke.de