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Patient Advisory Board
Strengthening the prospects for our patients
The Patient Advisory Board reviews the activities of the Hubertus Wald Tumor Center – University Cancer Center Hamburg (UCC Hamburg) in terms of patient orientation and advises on strategic issues.
The Patient Advisory Board of UCC Hamburg advises the Executive Board of UCC Hamburg and the physicians and scientists working at UCC Hamburg on the strategic development and implementation of cancer research and care in our network. It also has the task of reviewing the patient orientation of the UCC Hamburg with regard to sustainability and contributing to ensuring that research and patient care at the UCC Hamburg are primarily geared toward patient benefit and take the patient perspective into account.
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The Patient Advisory Board usually meets four times a year and is given the opportunity to receive training on specific research topics. The topics are selected based on the wishes of the Patient Advisory Board members and are also geared toward the strategic issues of the UCC Hamburg.
The Patient Advisory Board members use this information to develop topic-related statements and recommendations for the UCC Hamburg Executive Board, thereby supporting the work of the Cancer Center by using their experience to highlight the patient perspective and draw attention to unforeseen risks in the implementation of research projects.
What we bring to UCC Hamburg
- We align the work of the UCC Hamburg with the patient perspective.
- We are committed to the well-being of patients.
- We integrate the views of relatives.We ensure the visibility of self-help groups and patient organizations.
- We ensure that research and care are geared to the actual needs of patients.
- We are working to expand patient participation at various levels of the Cancer Center.
- We strive to establish networks in northern Germany, e.g., with the patient advisory board at the University Cancer Center Schleswig-Holstein.
In short we contribute our perspectives, experiences, and priorities to achieve effective, needs-based, and humane care.
We are the members of the Patient Advisory Board
The Patient Advisory Board consists of twelve members. We represent patients with very common cancers, but also those with rare cancers. In addition, parents of children who have had cancer, representatives of the young adult age group (CAYAs), and relatives are also represented. This allows us to draw on the widest possible range of experiences, which we can contribute to the UCC Hamburg.
- Ernst-Günther Carl, Selbsthilfegruppe Prostatakrebs Pinneberg
- Ariane Fischer, Angehörigengruppe der SHG Speiseröhrenkrebs
- Dorothee Iversen, Fördergemeinschaft Kinderkrebs-Zentrum Hamburg e.V.
- Silvia Kleinebeckel, diverse Projektbeiräte
- Otmar Kodalle, Selbsthilfegruppe Speiseröhrenkrebs
- Heide Lakemann, Frauenselbsthilfe Krebs e.V.
- Jürgen Martens, Multiples Myelom Selbsthilfegruppe Hamburg
- Ines Moegling, diverse Projektbeiräte
- Hayriye Oguz, BRCA-Netzwerk e.V.
- Kai-Uwe Parsons-Galka, Förderverein für Knochenmarktransplantation in Hamburg e.V.
- Fabia von Blücher, CAYA
- Katrin Wemheuer, Sherpa-Initiative des Fördervereins für Knochenmarktransplantation in Hamburg e.V.
(in alphabetical order)
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Participation & involvement in the tumor center
Cancer patients and their relatives bring a wealth of experience and knowledge from their own medical history or from accompanying partners, which is very valuable in improving care structures.
Coordination
If you have any questions about the Patient Advisory Board at UCC Hamburg, please contact:
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Further information
Do you have any questions or would you like to make an appointment? Here you will find our contact details for UCC Hamburg.
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